Welcome to PodoNet

The PodoNet Registry explores the demographics, causes and prognosis of patients with congenital and steroid resistant nephrotic syndrome. The Registry is open to all clinician scientists who want to contribute information about patients with this rare condition.

The clinical and genetic information collected serves to provide an evidence base for diagnostic and therapeutic decision-making, to establish genotype-phenotype correlations in hereditary forms of the disease, and to collect a critical mass of cases and families to foster the search for new genetic entities.

If you are a pediatric or adult nephrologist interested in participating in our registry, please complete this Registration Form.

To date, 88 pediatric nephrology centers in 28 countries have registered with PodoNet.
Currently, 2039 patients from 73 centers are followed in the PodoNet registry.